By Perseverance

By Perseverance

Hey Friends- Whimsical Wednesday is here once again! I’m so glad you’ve stopped by to join the blogger link-up party where you will find nothing but 100% Christian encouragement. You are so faithful each week to join in our community with wonderful posts on a variety of topics and I’m…

Rare Disease Day

Rare Disease Day

Today is Rare Disease Day. As many of you know, my daughter, Taylor, has a rare genetic metabolic disorder, MPS. Her subtype is known as Sanfilippo Syndrome. Her disease is neurologically degenerative and the average lifespan for her type of MPS is 10-15 years. Taylor is 17 and God has…