Sometimes a story starts with a beautiful background. A description of gorgeous foliage and blue waters gleaming. Mountainous resorts or sandy beaches strewn with starfish and shells. Sometimes it starts with presence. Character traits artistically worded and personified. Life so precisely perfect. Can I just tell you that this story…
Sweet Toddler Tarah moved up in the world on Saturday night. Her first night in the big girl bed. No more baby bed. (Sigh.) Having reached age 2, she was ready. Having reached the proud state of independence prior to age 2, she was ready. Having an almost 4 month…
Yesterday was an ordinary day. Going through the summer routine. If there is such a thing. Then all of the sudden, my day LIT UP! The privilege to attend Women of Faith’s Imagine Tour has been afforded to me and am I ever stoked about attending! What is Women of…
“Purplicious Courage”, the annual Ohio MPS (mucopolysaccharidoses) Family Gathering, was held Sat., July 9. 2011, from 12-4pm. 16 families with children affected by MPS and ML disorders came from Indiana, Wisconsin, New York, Tennessee and Ohio to celebrate the children and encourage one another. Northwest Bible Church in Hilliard, OH…
The sea of purple boxes and bags that filled my dining room has diminished significantly since yesterday has passed. But our hearts are full and overflowing because our family had the privilege of hosting the Annual Ohio MPS Family Gathering for the 10th time. Purple has always been Taylor’s favorite…
Sometimes you have to stop what you are doing and remember why you’re doing it. This is one of those moments. This Saturday, about 20 families will join together for a day of fun and sharing. All have a common bond: a child with a terminal illness, MPS (mucopolysaccharidoses). So…
Have you been there? The words aren’t coming to your mouth. They aren’t even formulating in your mind in cohesive sentences. Just a swirl of ideas and thoughts and phrases …and run-ons. Your brain won’t form words because the depth of your soul is just so anguished. The possibilities…
Last week, Taylor, my daughter who has MPSIIIB, caught a cold. Not a problem. At least it seemed that way. Then over the next couple days, she was not herself. Made it through the last day of school and then a little extra sleep. Saturday, she seemed to be a…
A Groucho Marx classic, two of my kiddos recently chose a prize of disguise from the dentist’s treasure box. My kindergartener fell in love with the prize. So much so, that he decided to sleep with it. Not unusual for him, but Daddy caught him, sleeping incognito. The next morning,…
Imagine what it would be like to have the loss of one of your senses. Imagine a silent world. No laughter or music. Missing the glorious sound of the Hallelujah Chorus. Imagine a dark world. No rainbows. No lush, green meadows. Not knowing your favorite color. Imagine the inability to…
I can’t believe it. This week we celebrated Tarah’s birthday and already, she’s two. Her birth story is such a blessing to tell and here’s why: In 2007, Matt and I discovered that I was pregnant and we were thrilled to anticipate the sixth addition to our merged, growing family….
The first week Tessa was home, one morning as I was making oatmeal, I caught myself with one eye closed and barely avoided using chili powder in place of the cinnamon. I can only imagine the look Taylor would have given me for that one. Easter weekend, I was supposed…
