In one of my earlier blog posts, I announced that Matt and I would be running a Half Marathon (13.2 miles) as we celebrate Taylor's 13 wonderful years of life. Taylor, our daughter with MPS, was given the average life span of 10-15 years for her disease and so we are thrilled that God has blessed us richly over the last 13 years.We have been members of the National MPS Society for seven years and … [Read more...] about Celebrating 13 Years in 13 Miles
"There's no sweeter sound than to hear your baby say "DA-DA"." This was my husband's facebook status last week. I replied that I thought "MAMA" might be sweeter. We have yet to hear "Mama," but the dada song has been going all week. I think the little one has him wrapped around that pinky. In fact, she probably did the moment she was born. Our other sweet girl, Taylor, hasn't been able to … [Read more...] about Sweet Sounds
I remember one time someone asked me what I wanted to be when I grew up and I said, "A truck driver." At five years old, it seemed like a fun job to me. The truck was big and gave you a feeling of power when sitting behind the wheel. Believe me when I tell you that I'm definitely not qualified to drive a truck.This picture is of me and two of my younger siblings. One of my older sisters (there … [Read more...] about When I grow up…
Just came back from worship ministry rehearsal and it was fantastic, as usual. Our worship pastor reintroduced a song we did years ago. Nine years ago, in fact. Back then, Matt and I sat on the opposite side of the auditorium and I sang soprano instead of playing keyboards as I've done for the last ? years. I remember the Sunday that we praised the Lord with this particular song, even though it … [Read more...] about In the Presence of Jehovah
Ever read that book? Trust me, we are asking that question all the time at our house. Over the weekend, I quickly threw the diaper bag over my shoulder and caught the scent of sunscreen. Immediately a smile came across my face. Read on and you'll understand:Last summer I took my three youngest kiddos and the baby to the free Tuesday morning movies at the cinema. It's no small task to take … [Read more...] about Who’s Making that Smell?
Before American Christians complain, we should first think of the country of Haiti.When our car doesn't start and we have to get a jump,we should be happy to have a car.When our screaming baby wakes us in the middle of the night,we should be thrilled that we have the means to soothe that sweet baby and provide for his needs.When our hot water runs out before we were ready to get out of the … [Read more...] about Comprehending Haiti
I admit it. Recently I had been worrying about some issues. Oh, yes. I know. Worry is a sin. But that downward spiral of anxious thoughts left me fretful and even fearful. Instead of choosing to give these burdens to the Lord and leave them there, I kept picking them back up. Finally, enough was enough and as I fell asleep, I asked the Lord to give me replacement thoughts in the morning. I had … [Read more...] about Worries and Frets and Fears, Oh My!
Taylor is our 13 year old daughter who has MPS (mucopolysacchridoses), also known as Sanfillippo Syndrome. When Taylor was four years old, she was diagnosed with this rare and terminal disease; the average life expectancy is 10-15 years. Living with this disease has taught us so much over the years about living each day to the fullest and appreciating every day as a gift from God.As I posted … [Read more...] about Lucky Number 13: Motivation for Half Marathon