Rare Disease Day is HERE!

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It’s a rare day! Rare Disease Day, that is.

What is Rare Disease Day?

More than 600 patient organizations, government agencies, educational institutions, clinical centers, and companies have signed on as Rare Disease Day Partners in the U.S., which means they support the global theme and goals of Rare Disease Day.

My Taylor has one of those rare diseases, mucopolysaccharidoses (MPS.) The National MPS Society posts:

The purpose of World Rare Disease Day is to harness the creative energy of the millions of people around the world with rare diseases — as well as that of all the people who care about and assist them — to help others understand certain fundamental issues that need to be addressed.

You can find more personal posts about life with MPS at the top of this page under the category of “MPS.”

There is a wealth of information at the National MPS Society website. I hope you’ll pay them a visit!