All of us dream and make plans in life. But not all of those dreams come to life. As if I need to explain that to you. Last week, my son asked Daddy, "When you were young, what did you want to be when you grew up?" "Well, when I was really little, around 5 years old, I wanted to be a doctor during the week and a preacher on the weekends." The children thought this was such an awesome idea. … [Read more...] about When Dreams Get Stripped Away
MPS
Bible Reading Challenge Check-In
Hey Friends! Monday is here and so is the Bible Reading Challenge check-in! After being so excited to have caught up on the reading, I got a day behind this week. My time was filled with party preparations for the annual Ohio MPS family gathering that my husband and I host each year and I had a hard time adjusting and balancing my time throughout the whole week. This is the 12th … [Read more...] about Bible Reading Challenge Check-In
A Prayer for Special Needs Moms & Whimsical Wednesday Blogger Linkup
As mama to a special needs girl with a rare metabolic disorder, MPS, the road of special needs parenting can be a lonely one. Sometimes I want to tell God that he chose the wrong mama for Taylor. But he didn't- his plan for Taylor included me- so I'm giving you the best advice I have for those times when you just don't have answers, or you are frustrated beyond yourself. Or you just feel like you … [Read more...] about A Prayer for Special Needs Moms & Whimsical Wednesday Blogger Linkup
Rare Disease Day
Today is Rare Disease Day. As many of you know, my daughter, Taylor, has a rare genetic metabolic disorder, MPS. Her subtype is known as Sanfilippo Syndrome. Her disease is neurologically degenerative and the average lifespan for her type of MPS is 10-15 years. Taylor is 17 and God has graciously blessed us all with her health. While we have our ups and downs, each day we live is by faith, … [Read more...] about Rare Disease Day
Wonderful Time at the Ohio MPS Family Gathering
On Saturday over 20 families who have children with MPS, a rare metabolic disorder, gathered together for Evento Italiano to celebrate the children and encourage each other at Northwest Chapel in Dublin, OH. Mucopolysaccharidoses (MPS) is a genetic lysosomal storage disease caused by the body's inability to produce specific enzymes. My daughter, Taylor, is affected by the disorder. For the … [Read more...] about Wonderful Time at the Ohio MPS Family Gathering
International MPS Awareness Day May 15
International MPS Awareness Day is a special day close to the heart of the Wojo tribe. There are some days in life you never forget and one of them for me was the first night I read the word mucopolysaccharidoses (MPS). A pit formed in my stomach and tears flowed down my face as I recognized and matched all Taylor's symptoms together in one explanation after searching for several years and … [Read more...] about International MPS Awareness Day May 15
God Is Bigger
Update: 11/2/12 9:00 pm: Through the wonderful outreach of Samaritan's Purse (along with a few tweets, facebook messages, and phone calls), the Begs are sleeping warmly in their own home tonight!! GO God!!! AND through one of the incredible blog readers of this blog, by tomorrow 30 gallons of gas will be delivered to them, allowing them to keep a warm home, cook on a stove, and have light … [Read more...] about God Is Bigger
Tremendous Support from What’s In the Bible?
What's In The Bible? is featuring the Carnival of Courage today on their blog. How exciting is that!! Here's a little glimpse of my writing there and thanks for clicking over to their site to read the rest! What's in the Bible? Supports Carnival of Courage I'll never forget two specific days in the life of my daughter's journey with her disease. The first was the day we received Taylor's … [Read more...] about Tremendous Support from What’s In the Bible?