A Prayer for Special Needs Moms & Whimsical Wednesday Blogger Linkup
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A Prayer for Special Needs Moms & Whimsical Wednesday Blogger Linkup

As mama to a special needs girl with a rare metabolic disorder, MPS, the road of special needs parenting can be a lonely one. Sometimes I want to tell God that he chose the wrong mama for Taylor. But he didn’t- his plan for Taylor included me- so I’m giving you the best advice I…

Rare Disease Day

Rare Disease Day

Today is Rare Disease Day. As many of you know, my daughter, Taylor, has a rare genetic metabolic disorder, MPS. Her subtype is known as Sanfilippo Syndrome. Her disease is neurologically degenerative and the average lifespan for her type of MPS is 10-15 years. Taylor is 17 and God has graciously blessed us all with…

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Wonderful Time at the Ohio MPS Family Gathering

On Saturday over 20 families who have children with MPS, a rare metabolic disorder, gathered together for Evento Italiano to celebrate the children and encourage each other at Northwest Chapel in Dublin, OH. Mucopolysaccharidoses (MPS) is a genetic lysosomal storage disease caused by the body’s inability to produce specific enzymes. My daughter, Taylor, is affected…

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God Is Bigger

Update: 11/2/12 9:00 pm: Through the wonderful outreach of Samaritan’s Purse (along with a few tweets, facebook messages, and phone calls), the Begs are sleeping warmly in their own home tonight!! GO God!!! AND through one of the incredible blog readers of this blog, by tomorrow 30 gallons of gas will be delivered to them,…