Saturday, May 15, 2010, Matt Wojnarowski was up to sing the National Anthem for the Columbus Clippers baseball game and the Clippers honored the Wojnarowski family by announcing National MPS Awareness Day! Taylor’s photo was shown on the big screen.I am so proud of Matt and Taylor and want to…
Yesterday Senate Resolution 530 was passed, which calls for May 15th to be National MPS Awareness Day. This coincides with other countries and I am excited to bring light to the first International MPS Awareness Day! If you’ve never read my blog before, then what is MPS? Click here to…
Matt and I had a weekend in Nashville at the Country Music Half Marathon that was fabulous! We had a ton of fun, finished the race before the rain appeared, and loved celebrating Taylor. Our friends, Aaron and Heather Conrad, were tremendous supporters and encouragers for which we are so…
This Saturday, April 24, 2010, Matt and I will be running the Country Music Half Marathon in Nashville, TN. We are very excited about this opportunity to celebrate our daughter, Taylor, who is 13 years old. We’re calling it “Celebrating 13 Years in 13 Miles.” God has graciously given Taylor…
Hard to believe, but the race is only two weeks away!! If you are just now reading about our incredible opportunity, then on Sat., April 24, 2010, Matt and I are running the Country Music Half Marathon to celebrate the wonderful blessing of our sweet girl, Taylor. Taylor’s life expectancy…
You Might Be A Special Needs Mom If…. So lately I’ve been thinking about the life of a special needs mom a little more. And well, those thoughts led me to: Jeff Foxworthy’s “You Might Be a Redneck.” How did that happen? If you are a special needs mom (or even…
Matt and I are excited to “Celebrate 13 Years in 13 Miles” for our sweet daughter, Taylor, who has MPS. As I explained in previous posts, Taylor’s life is definitely to be celebrated, as her diagnosis of MPS has a typical lifespan of 10-15 years. April 24, 2010 is the…
In one of my earlier blog posts, I announced that Matt and I would be running a Half Marathon (13.2 miles) as we celebrate Taylor’s 13 wonderful years of life. Taylor, our daughter with MPS, was given the average life span of 10-15 years for her disease and so we…
“There’s no sweeter sound than to hear your baby say “DA-DA”.” This was my husband’s facebook status last week. I replied that I thought “MAMA” might be sweeter. We have yet to hear “Mama,” but the dada song has been going all week. I think the little one has him…
