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God Is Bigger

Update: 11/2/12 9:00 pm: Through the wonderful outreach of Samaritan’s Purse (along with a few tweets, facebook messages, and phone calls), the Begs are sleeping warmly in their own home tonight!! GO God!!! AND through one of the incredible blog readers of this blog, by tomorrow 30 gallons of gas will be delivered to them,…

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Saturday is Party Day!

Sometimes you have to stop what you are doing and remember why you’re doing it.  This  is one of those moments. This Saturday, about 20 families will join together for a day of fun and sharing. All have a common bond: a child with a terminal illness, MPS (mucopolysaccharidoses). So why do we plan and prepare for this…

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What is MPS?

I never knew  what MPS stood for until March 2001.   But neither did the twenty-some odd doctors I took my daughter to visit in the preceding months and years. May 15th is International MPS Awareness Day.  One purpose of this day is simply to make people aware of the disease, mucopolysacchridosis (MPS), so that…