My Taylor girl turns sweet 16 today;16 is significant for many reasons. Most would think of a driver’s license…dating… But for our family, Taylor turning 16 is HUGE simply because- we were never sure that Taylor would turn 16. Since we received Taylor’s diagnosis of MPS when she was 4 years old, a medical number has been assigned to her days on earth. The average lifespan for a child with MPS is 10-15 years. God has been very gracious and we’ve learned to trust His timing.
So today we celebrate! We celebrate life as a gift and Taylor as a gift. A very small part of that gift are the words that follow:
Though you can no longer sing, your sweet melodies echo from previous years as those of a musical genius.
Even if you cannot speak, your execution of life lessons is flawlessly delivered to willing students.
While you can’t form sentences or write even one letter, your dissertations flow as the most polished author.
You may be stumbling more frequently and losing the ability to walk, but your life is the finest example of firm tenacity and perseverance.
Each day you teach me that life is so much more about BEING and not DOING.
Each day you lead me on the journey of faith in God, belief in His Word, that all things work together for those who love Him.
Every day you are a clear reminder to trust God, not only for eternal life, but for everyday life.
And so we celebrate the gift of life God gave through and in you. I love you dearly and look forward to the day in Heaven when you will be whole, without MPS, singing and dancing and chattering once again.
I would love it if you’d leave Taylor a birthday wish in the comments today. Have a wonderful day and be thankful for the gift of today.